Trauma Headquarters and ADSG

Early tomorrow (Sat.) morning, DH, DS10, and I will venture to Springfield, MO for BIT therapy with a practitioner there.  We're cautiously hopeful.  DS10, when he heard about, started yelling and saying "no way I'm going....."  He doesn't much like surprises, can you tell?  When he calmed down I explained more about what we were doing and why, and he said he'd go.

Please pray with us that this will be an good trip, and that DS10 will feel better, and be better able to self-regulate after the therapy.  I need to figure out some fun things to do with him, too, so pray for creativity for this tired mama!

Thanks, all!

I don't know if it's still there or not, but there used to be a really neat drive-thru wild animal park along I-44 near Springfield, IIRC.

Will keep you in prayer.

Oh - and of course - the big Bass Pro Shop is in Springfield.

Praying for a good trip.

Praying here as well.

Definately praying for an uneventful trip and a beneficial treatment.

Keep us posted Jeannie.  Hoping it's a great experience.

Thanks everyone!  Ds10 started amping up tonight..... anxious about the trip tomorrow and the unknown BIT therapy.  We're in the process of gettting him settled and to bed.  I hope tomorrow goes better.  Sure appreciate the prayer. 

Praying here also!

blessings

Sorry....saw this late.

Hope it went well.  Let us know!

Thinking of you!

blessings

Update?

Late, but prayers from here too.
 :coffee2:
anne

Update:
Well, we went through the whole BIT protocol with DS10.  He got really frustrated at one point and had a mini-tantrum, but then recovered and went back at it.  The practitioner was very nice.  The BIT itself...... definitely weird.

We're in a "wait and see" mode.  At this point DS is doing well, a bit hyper, and happier than usual.  He's been singing, hugging, not as defiant.  We'll see after more time goes by if there are any permanent changes.

Dh and I spent the time during the BIT watching, praying, and reading.  It's our prayer that the Lord uses this, no matter how weird it seems, to bring a measure of healing.

Thanks for the update!

Thank you for keeping us in the loop, Jeannie! 

Interesting Jeannie - please keep keeping us posted as time goes on.   :wave: :wave:

I think the waiting is getting to me.  I'm in the "when will the other shoe drop?" mode. Today I feel emotionally exhausted, teary, and irritable.  (No PMS).  Feels PTSD-ish, but nothing's happened to trigger me.

It's actually been almost 4 days with no real tantrums, just a couple little hiccup-tantrums.  I should be happy, but instead feel frightened.

Crazy-making stuff, this parenting a child with alphabet soup disorder.

Jeannie....your "normal" is to be hyper vigilant.   Not only consciously, but unconsciously and even physically.   Try and enjoy the calm or at least try and relax to give yourself a break.   Of course, by relax I mean in a half stoop in case you need to duck quickly.   Not weird at all to want to be a part of your son's healing.    Keep us posted.

If this turns out to be his new "normal," it is still going to take you a while. HIS brain got re-wired. Yours didn't. You are still hypervigilant and looking for the threat.

Try some deep-breathing, mindfulness, relaxation exercises. And a beer or a glass of wine or a margarita wouldn't hurt. And melatonin at bed time!

Glad to hear you're seeing a positive difference.

I can relate to the discomfort of change.  Even though it is good change, it is still the unexpected.  I know that whenever things are different in my life I go through this transition of trying to figure out what to put in place of the old feelings.  I tend to get anxious and depressed or overly excitable.  Hopefully you will level out as you figure out whether there is real change or temporary and you adjust to whatever the new normal is.  Hang in there and keep us posted.  Sorry it's so hard on you.   :love9:

Today's been better.  What you all said about change and hypervigilance makes a lot of sense.  I'm afraid to be hopeful, too, but am anyway.  I think of your poem about hope, Justine, and catch a glimpse of my conflicted self in those images.

Kathleen, you're right about my brain not getting rewired.  While Mary was working on DS10 I kept thinking that it might be worthwhile to go for it myself.  Not having the extra $$ is a deterrent, but maybe later on down the road I can look into it for myself.

Truebluemom, you're right.  Even good change means having to prepare for the unexpected.

So for now, with another good day with DS10 coming to a close, I think I'll not overthink this and snitch one of Dh's beers and just try to enjoy the calm.  Thanks for understanding.  :-\

Continued prayers from here, Jeannie.  Mostly for you this time, because I walk that path you're on every time improvement enters the door.  Praying that the glimmers will become treasures for your heart and that He will place His peace upon you.
 :coffee2:
anne

Thanks, Anne - for both the prayer and the understanding.  I value them both, and I value YOU, who gives them so generously!

((((Jeannie)))))   

Kathleen....  I  just sent you a p.m.  about the BIT and my questions.

Thanks for the hugs and understanding, y'all!

DS10 is doing so-so.  He's somewhat more regulated, but still can be explosive.  At first he was sleeping better, but the last couple of nights he's come into our room with nightmares.  I don't quite know what to think about it all.

Hmmm, Jeannie.  Hoping ds settles down.  Wonder what got shaken loose?  Do you think it's situational or the bit?

I don't know what got shaken loose, but it's nothing new, I can assure you.  He'll do fine for days, weeks, sometimes even months at a time.  Then WHAM!  He holds things together beautifully when he wants to (school, Sunday School, with friends) but can't seem to maintain that long-term.  He sees us, his family, and that's when the tantrums start.

My gut says FAE, with layers of alphabet soup stuff compounding it.  In many ways he sounds like a younger version of your dd19(?), True.  He's pretty attached, but it's kind of tenuous.  He seems to have about zero tolerance for frustration, delayed gratification, etc. when he's home.

At school he's a different kid.

He does sound like mine, Jeannie.  She didn't hold it together anywhere very well.  School was iffy for her.  She acted out, but could have been worse.  She got very strange with stalker like stuff toward young women whenever we went places around ages 11-13.

Still hoping you'll see some positive results at some point.  I wonder if bit can help FAE?