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Community Center => Prayer Requests => : Mama Bee1 December 05, 2016, 09:52:55 PM



: Prayers for my health, please
: Mama Bee1 December 05, 2016, 09:52:55 PM
It seems that there are still some questions about my health since I didn't snap back after the transfusion I had at Thanksgiving.  I am getting another transfusion and a bone marrow test this week. My husband is having some health issues too, but his are known and definitely treatable.

I could use prayers for peace and calm in my household and a willingness to accept help when it is offered.

My anxious kids are more anxious and some of them are angry.

The fact that I really do need to rest is hard for some people to accept.

The Holy Spirit has told me that something wonderful is coming and also that I am about to go through one of the hardest times of my life. The hard part is what is scaring me.

Thanks for the prayers.


: Re: Prayers for my health, please
: Eliza December 06, 2016, 12:38:22 AM
I am praying for you. 


: Re: Prayers for my health, please
: Hope December 06, 2016, 06:25:11 AM
Father, I pray your best for Mama Bee.  Envelope her in your peace as you take her through this journey.  Give her endurance and focus her on you and you alone.  If others in the house choose not to see You through this, show her how to keep moving forward.  We boldly adk for you to heal her body and spirit.   Bless her today as a child of the king.  In your name I praise, amen.


: Re: Prayers for my health, please
: Sherrie1003 December 06, 2016, 06:26:13 AM
Mama Bee1,

I will be praying for you as well. I think knowing what God has in store is helpful and scary. But, trust He will never leave you alone. He knows what you need and the hardest part for me is taking the help when it arrives.

Take care of yourself. This time of year makes all kids anxious and our RADs are just 10X worse.

Praying!

Sherrie


: Re: Prayers for my health, please
: Mama Bee1 December 06, 2016, 09:30:31 PM
Thanks for the prayers. Things are calmer. The angry one is doing better. I was able to talk to another one and calm him down by telling him what might change and what wouldn't. Other times I might have just gotten exasperated and ended up yelling.

I don't feel as scared as I did. Some things have been coming to mind that I had been scared about in the past, that weren't as bad as people made them out to be. One of my adult dd mentioned that at least they aren't insisting that I be immediately hospitalized.

Many people are offering to help in ways I didn't imagine would happen. The kids' school staff  is offering to bring meals and transport kids to events that I thought that they would have to miss. My church is offering to help. I just need to overcome my embarrassment about having a messy house and be willing to take help when it is offered.

I rested and did very little compared to what I had been trying to do so I don't feel exhausted.

Tonight I called my mom and talked to her. She was so happy that I told her what was going on. She had heard second hand through my siblings when I went into the hospital and she had been worried. Now she feels okay since she heard my state of mind.

God is good. All the time. Thanks again for the prayers.


: Re: Prayers for my health, please
: Sherrie1003 December 07, 2016, 02:44:17 AM
Mama Bee1,

Since I am eternally looking for ways to help my kid get empathy and compassion, I have an idea that maybe you could suggest to your children that since you are feeling ill, it would be very helpful if they all helped out by doing some extra household chores fro you. I believe that will allow your kids to show love and then feel good as well. It's all in the little steps but if the kids know you need help they may feel good about being in charge to do it. my sons have amazed me at times with their compassion and kindness when I didn't think it possible. This may be a chance for you to let them help.

Just an idea. I am not wanting you to have more stress but less by letting them clean and such.

Still praying you get well soon. :love4:

Sherrie


: Re: Prayers for my health, please
: Mama Bee1 December 07, 2016, 06:28:12 AM
Thanks Sherrie, that is a good idea. I have been doing that so it is nice to know that others do it and I don't have to feel guilty.

They are preparing the meals, packing lunches and doing the laundry. Plus a bunch of other things.


: Re: Prayers for my health, please
: D December 07, 2016, 08:20:21 PM
Praying for peace for you, above all else. Hugs.


: Re: Prayers for my health, please
: Mama Bee1 December 07, 2016, 09:10:15 PM
Thanks for the prayers. Today was a rough day and I am wiped out.


: Re: Prayers for my health, please
: RADDails December 08, 2016, 09:28:24 AM
All of the best, good health, and wonderful, knowledgeable doctors for you!



: Re: Prayers for my health, please
: Mama Bee1 December 12, 2016, 01:44:42 PM
Please keep praying. It is way worse than I thought it would be trusting God will bring me out on the other side. I will update with more details soon.


: Re: Prayers for my health, please
: Eliza December 12, 2016, 03:29:40 PM
I am praying for you and sending hugs.


: Re: Prayers for my health, please
: Hope December 12, 2016, 05:55:35 PM
Still praying.


: Re: Prayers for my health, please
: Mama Bee1 December 12, 2016, 07:23:57 PM
Thank you. I will have info on Friday about the extent of the problem.


: Re: Prayers for my health, please
: Sherrie1003 December 13, 2016, 04:44:44 AM
I am still praying too!

God will bring you through this time of testing. I am certain he will use this to strengthen your family and open your DH's eyes more too!

Sherrie


: Re: Prayers for my health, please
: Mama Bee1 December 16, 2016, 10:30:15 PM
Let me say first that I am feeling encouragement each day from different sources. There is definitely a spiritual aspect to it all. I have seen visions of angels, my deceased relatives, spiritual giants including my buddy, Jesus and everything I see and hear is encouraging me that I am going to make it.

But I thought of Peter walking on the water and starting to sink.At times, I feel like that. There is the little voice that tells me I am just imagining the visions. Then more encouragement comes to reassure me. I am going to start writing them down for the times of day when I am discouraged. That usually happens around 7 pm for half an hour.

I have stage 4 breast cancer that has spread to my bones. I have told every doctor, nurse, technician, friend, relative and so on that I am bound and determined to beat it. I don't want them to tell me anything negative about my diagnosis and they aren't. I started on meds for the breast cancer on Monday.  Last night, for the first time in weeks, I had my old energy back, from before the worst of it a few weeks ago. It carried through today. I didn't need another transfusion because my hemoglobin was up higher than it has been since I got sick. The doctors and nurses were glad about that. The medicine doesn't kill the cells, it prevents them from dividing. Next week I am hoping I will start on the bone meds.I have to see the doctor againon Monday.

They did a pet scan to see if it had spread elsewhere, but the results aren't in.

All prayers are welcome.

Thanks to all of you for your prayers and love.


: Re: Prayers for my health, please
: Eliza December 16, 2016, 11:39:16 PM
You will be in my prayers many times each day, MamaBee.  I am sending you a long hug.


: Re: Prayers for my health, please
: D December 17, 2016, 12:05:24 AM
Mama Bee, you rock! You are an inspiration and an example to us all. I so admire your faith and your positive outlook. You can beat this!

Of course you are in my prayers and will continue to be. Meanwhile, here's some  :sunny: and a  :coffee2: you can put anything you want in, a :icon_flower: ,  a hug :love7:, and some encouragement :thumbsup:

Go forth and conquer!  :wav:


: Re: Prayers for my health, please
: Hope December 17, 2016, 04:08:05 AM
It's an honor to be praying for you, Mama Bee.  Will also be praying your faith will shine so brightly within your family that they will want it for themselves.  (((((((Mama Bee)))))))


: Re: Prayers for my health, please
: Sherrie1003 December 17, 2016, 06:02:16 AM
MamaBee1,

I will be praying. I applaud your positive attitude and faith. I will pray that God' healing comes to you and that He chooses to use you to touch people in amazing ways.

Sherrie


: Re: Prayers for my health, please
: RADDails December 17, 2016, 04:12:40 PM
I'm sending you all of the light and love you can handle.

Pure positive energy, love from above.

Love, hugs, and more love to you,


: Re: Prayers for my health, please
: OHGrandma December 17, 2016, 05:41:05 PM
Praying for your total healing on this side of heaven and praying that it touches the hearts of your children.

I totally believe you are seeing visions of your relatives.  I have told only 2 or 3 people what I'm going to share now.  I had a vision of my husband a few weeks after he passed.  He didn't quite look the same but I know it was him.  He was strong and healthy. He gave me a short message, and while there seemed to be a divide between us I still felt his presence.  I've had other dreams he was in but he always looked like he did here on earth. 

May we pray in accordance to God's plan for you. 


: Re: Prayers for my health, please
: Mama Bee1 December 17, 2016, 10:32:39 PM
Thank you everyone. Off to sleep.


: Re: Prayers for my health, please
: Mama Bee1 December 19, 2016, 06:52:40 PM
 Thank you for all the prayers. :laughing6: :laughing6: :laughing6: :laughing6: :laughing6: :laughing6: :laughing6: I am sooooo HAPPY! :love7: :love7: :love4: :love4:

 Today I got the news about the rest of the tests. I was afraid that the cancer had spread to other organs and they were going to say there was no hope.

The doctor said that it was confined to the breast, the bones and a couple of tumors in my neck.The meds I have been on for a week have already begun to shrink one of the tumors in my neck.
He explained that the meds for breast cancer can't kill the cells, but it keeps them from dividing. The meds for the bone cancer are something that only has been in use for a year. After the cancer in the bones starts to go away, I will need meds to strengthen the bones. It is the same thing they give people with osteoporosis and will be a shot every three months.

He said that what I have is very treatable and will allow me to live an extended life. He said he wants people to begin to think of treating breast cancer the way you would treat... I thought he was going to say HIV. He said high blood pressure! I feel like I have been given an extension on life. Hallelujah!

My sister-in-law called to express her happiness. She doesn't believe in God,but she is very happy that I have my faith to fall back on. She couldn't understand how I could exist through each day wondering what the outcome would be. I told her that many people were praying for me. I had some very low moments,but then I would focus on Jesus healing me and I would feel better. 

I told my daughter that I felt kind of silly being so concerned when the doctor was making it seem almost like nothing. She pointed out that who knew what might have happened if people hadn't been praying. God is so good.

Thank you all for your prayers and a Merry Christmas and Happy Hanukkah to everyone here.



: Re: Prayers for my health, please
: Sherrie1003 December 20, 2016, 06:28:00 AM
I'll take that as a miracle.!  :love7:

My friend told me about a woman who had stage 4 cancer and was given a few months. Her friends prayed and within a few weeks she was completely healed. The doctors were flabbergasted. They had never seen a miracle from God.

I am sure this will be scary for your kids. The fear of losing someone you love is always scary.

I will keep praying for you and that the meds work well and the pain is minimal.

Hallelujah!  :angel10:

Sherrie


: Re: Prayers for my health, please
: Cher December 20, 2016, 10:39:09 AM
Wonderful news  :blob1: :blob1: :blob1: I'm jumping for joy in Phoenix!

God is great! 

Will they be removing the mass's when they shrink enough?



: Re: Prayers for my health, please
: D December 20, 2016, 11:05:11 AM
SO happy for you MamaBee! Your post brought tears to my eyes.

Celebrating Jesus Christ and your miracle with you today!   :hello2: :blob6: :blob7:


: Re: Prayers for my health, please
: Eliza December 20, 2016, 01:21:35 PM
What great news!! I am continuing to pray for you and your family. 


: Re: Prayers for my health, please
: Mama Bee1 December 20, 2016, 10:08:19 PM
Thanks everyone! I wrote an email with responses to several of you. I pushed the wrong button and it is gone. I will write more tomorrow.

Thanks for all of the prayers.God is so good!


: Re: Prayers for my health, please
: RADDails December 21, 2016, 12:08:48 PM
Praise God!

What a lovely update for Christmas!


: Re: Prayers for my health, please
: Dkmama December 22, 2016, 04:43:36 AM
This is such great news! Praying for you all this Christmas season.


: Re: Prayers for my health, please
: Mama Bee1 December 22, 2016, 11:39:51 PM
Thanks for your continued prayers. My family doesn't understand how sick I am. Yesterday oldest dd wanted to take me Christmas shopping. She said we would go to three stores. I knew that I couldn't handle more than one and that one would have to be the one with the electric carts. We instead went to a store without any and  where there were no shopping carts available. I managed to make it slowly to the back of the store. At that point I was very tired and asked her to go and get me an empty cart from the front to lean on. By the time we went through the second store, where I ran into two people I knew,I was exhausted and had to come home to take a nap.

Tonight I called a neighbor who used to call me several times a day, who I hadn't talked to in several days.She is old and gets confused and often speaks her mind. In the middle of the conversation she asked me if I really believe the doctors when they say I am healed. That bothered me. I tried to explain that they said it can't be cured, but it can be managed or treated. She didn't sound like she believed me. I don't care if she doesn't believe me,but I don't need her negative input at this point.

I need to go and get some sleep. I will feel better after that.


: Re: Prayers for my health, please
: Sherrie1003 December 23, 2016, 06:33:16 AM
MamaBee 1,

There is a Walton's episode where Mr. Godsey has a heart attack and throughout the hardest part was for him to take it easy. Take it easy!

We all need you here to encourage us and what you share is encouraging. Your kids and husband need you and trying to do too much isn't good.

Plus, I believe everything and maybe it is good that the older lady forgot to call. Who needs rain on their parade?

Take care, take it slow and explain to your DD that you are sick still and that it will be very slow before you recover. Honesty is best and that is what your kids and family need. being strong sometimes means we have to admit our shortfalls or weaknesses.

God Bless, lots of prayers!

Sherrie


: Re: Prayers for my health, please
: OHGrandma December 23, 2016, 01:48:38 PM
MamaBee, maybe you could pray for that lady(and me!)?

Mark 9:23-25New King James Version (NKJV)

23 Jesus said to him, “If you can believe,[a] all things are possible to him who believes.”

24 Immediately the father of the child cried out and said with tears, “Lord, I believe; help my unbelief!”

25 When Jesus saw that the people came running together, He rebuked the unclean spirit, saying to it: “Deaf and dumb spirit, I command you, come out of him and enter him no more!”

So often, I feel like the father in Mark 9:24.  May the Lord rebuke the cancer cells within your body and make you healthy.


: Re: Prayers for my health, please
: Mama Bee1 December 23, 2016, 07:51:57 PM
Yes, I will pray for you,OhGrandma.

Thanks for the encouragement Sherrie. She called today and just wanted to say hi and hoped I am all right. I said yes and kept it short with no details so that was good. I also didn't try to go anywhere or do anything.


: Re: Prayers for my health, please
: D December 23, 2016, 11:25:20 PM
Mama Bee, regarding the older lady who questioned your optimism--you have to remember that in her generation, ANY cancer was the worst news ever. That's the attitude that folks of that era have. They don't realize that enormous strides have been made in the medical field, even in the last 5-10 years, that have revolutionized the way we view and treat cancer. You have every reason to be optimistic. Educating her likely won't work so, if I were you, I would avoid her negativity by refusing to discuss it with her.


: Re: Prayers for my health, please
: RADDails December 24, 2016, 10:50:57 AM

One thing I've learned is not to worry too much about other people.

1.  The old lady probably doesn't even remember calling!

2.  She's got no idea what you're going through, and

3.  It's your health and your body.  Don't let anything upset your happy, healthy, long-lived boat! 



: Re: Prayers for my health, please
: Mama Bee1 December 24, 2016, 11:39:16 PM
Thank you one and all. I have been having a hard time this week. Tonight I talked with a dear friend and adoptive mom who has survived breast cancer. She assured me that feeling tired most of the time was normal.My doctor said that I would be feeling better in about three weeks.I wanted to say," Ha!" He is young and appears to be unmarried and childless. I am old with a bunch of kids and a dh.  I am going to keep taking it easy.

My two childless adult dd were bothering me tonight.We had Christmas dinner tonight at the house of one dd and her boyfriend. As we were getting ready to leave dd was sternly lecturing my 8 year old on how he is perfectly capable of using the toilet and should not need diapers. Her boyfriend was surprised to hear that we have tried EVERYTHING. The diapers are not a battle I am not willing to fight right now. They are easier to deal with than fighting with him to clean up his mess. I finally told dd and her boyfriend to drop it and we left. I know she is scared about my health and thinks these other problems will make it worse.

When we got home and I tried to relax, my other adult dd start to tell me all of my shortcomings in parenting and how children #8 and #9 don't help with chores, are spoiled and blah,blah,blah. I told her what my priorities are right now and those aren't in the top ten. I also said that I didn't want to talk about it any more. She kept talking until I made it clear that I wanted to relax,not chat about it with her at 11pm.The kids will be up at 6 and she will be sleeping. She was offended and left the room. I apologized because I can also see how she is worried, but there is a time of day when I have had enough.

Good night my friends.


: Re: Prayers for my health, please
: Sherrie1003 December 25, 2016, 04:08:10 AM
Mama bee 1,

I used to think I knew so much about parenting before I had children. It's a funny realization when you get kids and realize you know very little. Although I agree the 8 year old should sue the toilet if he is RAD he isn't going to until he decides to. If he isn't RAD then he may not care anyway. I know you have worked hard at it and for now it's not a priority. Perhaps when he wants to spend the night at a friends house he will realize his buddies don't wear diapers. Maybe he will never care.

Please take care of yourself. That is what matters most.

Prayers for continued healing!

Sherrie


: Re: Prayers for my health, please
: Mama Bee1 December 29, 2016, 10:11:23 PM
Hi again. I went for a CBC (hemoglobin) check today and my count was way down to 6.3. I was feeling awfully tired and I thought it was low. It is disappointing and I was feeling discouraged. Tomorrow I have to go back to the hosp. for a transfusion with dh. Fortunately, I only need one unit.

A woman from church had said that she would have my kids over for a day this week, but that didn't happen.I told them that if I didn't hear from her we would do it here at home. While I was out the other day I bought supplies to make individual pizzas and a gingerbread house. That was what the lady had said she would do with them and they were really looking forward to it. I am glad I saved it for tomorrow. Two of my adult kids are here and they can do it with them.

The doctor had said that I won't need surgery,chemo or radiation, but I am not sure of that myself.

Cher,I am not sure about removing masses. The cancer in my breast was mistaken for calcifications for three years. No large lumps. The radiologist said that it can grow like a sheath across the breast tissue.

I need to go read something uplifting.


: Re: Prayers for my health, please
: Sherrie1003 December 30, 2016, 05:25:11 AM
Mama Bee 1,

I am still praying for you and please keep taking care of yourself. You need to focus on you and let the adult kids and husband focus on the younger ones.

Please know I pray for you as often as I think about you.

Sherrie


: Re: Prayers for my health, please
: D December 30, 2016, 11:04:34 PM

The doctor had said that I won't need surgery,chemo or radiation,


How can this be? Aren't those the ways they normally fight cancer? Perhaps they're using hormone therapy?

You remain in my prayers. Stay strong emotionally and spiritually, as well as physically. So glad you're finding people who are willing to assist with your children. I think that's great!


: Re: Prayers for my health, please
: Mama Bee1 December 31, 2016, 12:33:07 PM
Thanks for the prayers.

D-I misspoke. I am having chemo, but I will not lose my hair.The method they use is meds which keep the breast cancer cells from dividing. They don't kill the cells.

Sherrie- You are right. I need to back off from the kids. Dd13 is jumping on my last nerve.


: Re: Prayers for my health, please
: Mama Bee1 January 15, 2017, 03:03:33 PM
I had an appt. with my oncologist a week and a half ago. He said again that the tumors in my neck were shrinking. One that I could feel was a little smaller than the size of a peach pit. I can't feel it at all anymore. He said that it was impressive since I had only been on the meds for eleven days. 

I am trying to rest more than I had been. It is helping. I am reading bible verses on healing that I found on Joel Osteen's website.His mother Dodie Osteen was healed of terminal liver cancer back in 1981 when the doctors sent her home to die. Her testimony which is on youtube was helpful to me. She wasn't healed instantly and it took a long time while she was still very tired,but she was healed and is still alive.

I still struggle with doubts about the fact that I will really get over this and feel better.

The kids are hovering around and I can't think straight so ta-ta for now.


: Re: Prayers for my health, please
: Nookster January 15, 2017, 04:14:47 PM
Thinking of you and hoping things improve!   :love4:


: Re: Prayers for my health, please
: D January 15, 2017, 04:40:34 PM
Mama Bee, I'm happy to hear your good report and you will continue to be in my prayers.

I know that you know this already but it bears repeating: Remember that a lot of the tiredness and misery you're experiencing right now is NOT the disease process. It's from the medication. Sometimes it seems like the cure is worse than the disease but it's not going to be forever. Continue to hang in there and find rest wherever you can.


: Re: Prayers for my health, please
: Mama Bee1 January 16, 2017, 04:17:17 AM
More prayers please.I noticed a slight rash on my forearm yesterday morning in church and didn't think anything of it. By 4pm I had a rash on my upper arms. I called the doctor around 6  and they said to take Benadryl. I took some at 8 pm and 1 am. I awoke around 4:45 and it had spread to larger hives on my lower arm and lower back. I am taking more benedryl at 5:30 am and praying now.

I am scared that it is a reaction to the chemo meds.My adult son has a friend who almost died this week in an allergic reaction to chemo meds for breast cancer.


: Re: Prayers for my health, please
: Sherrie1003 January 16, 2017, 04:45:53 AM
Mama Bee 1,

That is very encouraging. Healing is occurring and I am so glad that God answered our prayers in such a positive way.

Sherrie


: Re: Prayers for my health, please
: OHGrandma January 16, 2017, 07:45:30 AM
Mama Bee, have you gotten the rash checked? I don't want to be an alarmist, but reactions can take place at any time of taking meds.  My husband developed a reaction to penicillin after 63 years of never reacting.


: Re: Prayers for my health, please
: Mama Bee1 January 16, 2017, 10:03:20 AM
I am making an appt. as I type this. My oncologist wanted me to get it checked out.


: Re: Prayers for my health, please
: Nookster January 17, 2017, 01:43:11 AM
I would definitely be seen for that in your situation, though I hope it is a minor reaction to your meds.  I was in hospital when "a rash" started.  They tried to ignore it initially, but it spread from my feet all the way to my neck.  It was vasculitis, a serious allergic reaction due to antibiotics they'd given me post-surgery.  They couldn't figure it out until they biopsied it.  I now list those two antibiotics with my serious allergies.

Here's hoping all is well with you!


: Re: Prayers for my health, please
: Sherrie1003 January 17, 2017, 05:41:47 AM
Praying more.

Sherrie


: Re: Prayers for my health, please
: Mama Bee1 January 17, 2017, 09:43:06 PM
The nurse practitioner said that it looked like a reaction to medication. She told me to take Tagamet since it is a histamine blocker, Zertec for the same benefits as Benedryl. The advantage in Zertec is that it lasts for 12 hours instead of four. She recommended Benedryl creme for topical application.  It is confined to my arms, legs and lower back. They warned me if I felt my tongue, throat or lips swelling to call 911. I knew that. She didn't seem too concerned. All of this is new to me so I tend to worry a lot.

Thank you for your prayers. I talked with one of my oldest friends tonight. She has a very strong faith and she reassured me again that all will be well.


: Re: Prayers for my health, please
: RADDails January 18, 2017, 06:38:57 AM
Great news and thanks for sharing the info.

We're praying for you here with much love.


: Re: Prayers for my health, please
: Sherrie1003 January 18, 2017, 07:06:27 AM
Thank you for the update. I am also agreeing with your friend that all will be well. Don't let the little hurdles change your faith or hope.

Still praying!

Sherrie


: Re: Prayers for my health, please
: Mama Bee1 January 18, 2017, 10:08:55 AM
Thank you friends.


: Re: Prayers for my health, please
: Mama Bee1 January 28, 2017, 10:18:17 PM
I am trying to keep track of things better.One nurse said that the rash could have been a reaction to Benedryl. At first it was just on my upper arms; then it spread to lower arms and all over my legs after I took the Benedryl. If that's true,it makes like easier that switching the chemo meds.

I was going to ask for prayers for a cold that I caught from my kids, but I took some meds tonight and I can breathe.I can feel that it is really taking the energy out of me,combined with the other meds.

God is good. Considering that I should be dead, I am doing pretty well.

As my dear old aunt used to say," Other than that Mrs. Lincoln, how was the play?"


: Re: Prayers for my health, please
: Sherrie1003 January 29, 2017, 04:59:36 AM
MamaBee1,

God only gives us one day at a time anyways because he knows that is all we can manage. Just take one day at a time and make the best choices you can to stay healthy and rest as much as possible with kids around.

I will keep you in my prayers.

Sherrie


: Re: Prayers for my health, please
: OHGrandma January 29, 2017, 08:24:13 AM
I am trying to keep track of things better.One nurse said that the rash could have been a reaction to Benedryl. At first it was just on my upper arms; then it spread to lower arms and all over my legs after I took the Benedryl. If that's true,it makes like easier that switching the chemo meds.

...

That seems odd to me, but I'm no doctor, I only play one on the internet!  My instinct says, Benedryl stops symptoms of allergic reactions, it doesn't cause them.  I would assume the Benedryl worked to slow down the reaction and it could have been worse without Benedryl.  I don't mean to scare you with that thought, but just urge you to ask the doctor administering the cancer drugs.


: Re: Prayers for my health, please
: Mama Bee1 January 29, 2017, 12:30:17 PM
Thanks Sherrie.

OHGrandma- I understand what you are saying. A chemo nurse told me about the possible Benedryl reaction when I went in for my transfusion this past week. This week I see the oncologist again so I will ask him. I am also looking to see if I am developing any kind of rash. So far nothing with this second round.

Thanks for the prayers.


: Re: Prayers for my health, please
: D January 29, 2017, 11:17:29 PM
A person can be allergic to Benadryl but more likely to the dye that's in it. If Mama Bee has a true allergy to the Benadryl, there are other meds like Vistaril that would serve the purpose. It seems to me they also make a dye-free version of the Benadryl.


: Re: Prayers for my health, please
: Nookster January 30, 2017, 02:29:20 PM
That's true about the dye in Benedryl, though I associate that with kids.  I had just assumed it was given as an injection or IV.  Definitely ask about that.  Could also be a preservative in it; meds that are injected all have weird preservatives to which you might have a sensitivity.


: Re: Prayers for my health, please
: Mama Bee1 January 30, 2017, 09:23:23 PM
I don't know. It is frightening how little some of the experts seem to know. I took over the counter oral Benedryl which I have never reacted to before in a negative way. So your guess is as good as mine. One of my adult dd thought that it could all have been based on stress. I don't know. I am just glad that I am still alive and feeling better tonight. The cold that I caught from my kids is waning. I had been scared that it would kill me since I had never been sick when I had such a low hemoglobin count.

God is good.


: Re: Prayers for my health, please
: Mama Bee1 February 04, 2017, 10:20:40 PM
Another good report on Thursday. My hemoglobin was down, but my platelets and white cells which had been down are back up.That is a good thing and something I had been concerned about. More tumors in my neck are shrinking. My cancer or tumor markers that had been at 97 in mid Dec. when I had only been on the breast cancer meds for a couple of days are now down to 62. The doctor said that was very good. I have nothing to compare it to,so I am choosing to believe him.

I requested and was going to insist on my favorite nurse doing my transfusion. She was assigned to me and told me about all of the symptoms of anemia which helped me realize that like D said on page 4 some of the time when I am down it is due to the anemia which wears me out.

My brother called tonight and it was great to hear from him. He shared with me that another person who hardly knows me wanted me to know that they are praying for me every day. That is very uplifting to me.

Take care my friends and thank you for all of the support.


: Re: Prayers for my health, please
: Hope February 04, 2017, 11:20:55 PM
Congrats on the good report!  Still praying.


: Re: Prayers for my health, please
: D February 05, 2017, 11:59:05 PM
Happy for your good report. Please keep us updated, to the extent that you want to share. You will remain in my prayers.


: Re: Prayers for my health, please
: RADDails February 08, 2017, 09:12:57 AM
I'll share my little gem of anemia help:

Geritol Tonic

It's the nastiest thing, but it works.  Learned about it with an anemic German Shepherd.  It's been my go to when I feel that weakness set upon me.

And liver and onions!   (as long as I don't cook it and stink up the house!)


: Re: Prayers for my health, please
: Mama Bee1 February 08, 2017, 10:02:12 PM
Raddails-I will have to check with my doctor. When I was first receiving the transfusions, I was taking an iron supplement and a vitamin with iron. My favorite nurse, (please pray I can get her when I go tomorrow) noticed that my iron was high and checked with the doctor who said to stop the iron supplements. I was told by another person from church that when you have too have many transfusions as in several hundred, iron can build up to a toxic level. This had happened to a relative of theirs. I think it is just part of what I will have to go through for now. But I will check into that.Thank you.

I found a good antidote to the tiredness today. 

I came home from my weekly blood test, feeling a bit tired and down, knowing that yet again I would need a transfusion.
The cure? A back-talking,sassy,whining,screaming, defiant, lying teenage radish! She made me so mad today, I jumped up and said,"Let's go!".
I was ready to run to her school to get the study materials she had neglected to bring home again. I had warned her that if she didn't bring them home today there would be consequences that she didn't like. She refused to move off the couch so I told the other four to jump in the car, grabbed the snack of pizza and told her she would be having none and left her to be bored to death by a lecture from dh.

We got to the school. They called her teacher up to the office and he said that she was lying about what she said to me today. I got on the phone and called her and made her talk to him. He confronted her about her latest lie to me. She was NOT happy. I felt great. A little tired. So I rested and then took the other kids off to do some fun things that required no energy from me.

By the time we got home, she was still in denial about being responsible for any of her bad grades. She got so mad she stomped off into the bathroom, slammed the door and took a bath! She sure showed me,didn't she? She had refused to bathe for a week so it was a win-win situation. When she got out, she was appalled that I had the audacity to insist that she put on clean underwear(after a week,it gets pretty ripe) before she ate dinner. By the time she sat down to eat she was relatively compliant. I enjoyed an evening of no sass from her while I rested and she cleaned up the kitchen. :D :D :D


: Re: Prayers for my health, please
: Sherrie1003 February 09, 2017, 05:29:26 AM
Yeah!

That is funny and sad because it is so typical of our RADishes.

I am glad you rested eventually.

Praying for your next transfusion to be your last!

Sherrie



: Re: Prayers for my health, please
: RADDails February 09, 2017, 07:51:10 AM
Great story.  Why do we love the stories when a RADish gets a come-uppance?!



: Re: Prayers for my health, please
: Mama Bee1 February 09, 2017, 03:21:12 PM
Raddails- I guess I love it because I feel beaten down by her nonsense so much of the time and right now I REALLY don't need it.

Bad news and good news- The angels had a snow day today and that drove me a little crazy since they were home all day. They went outside for what felt like 15 minutes.

Good news- I was stuck home with them because my hemoglobin was up to 7.2 which is considered good in the world of cancer so I didn't need to get a transfusion. It may be because they gave me two units of blood last week. Hoping it will last until next week and not go down by Monday.


: Re: Prayers for my health, please
: Hope February 09, 2017, 03:35:35 PM
Yeah for good news!


: Re: Prayers for my health, please
: Sherrie1003 February 10, 2017, 03:00:01 AM
Yeah because God answers prayers.

I will keep praying tat you don't need more blood transfusions and that the doctors are baffled by your healing.

Sherrie


: Re: Prayers for my health, please
: Mama Bee1 February 10, 2017, 04:49:04 PM
Thank you for the continued prayers and good thoughts.


: Re: Prayers for my health, please
: Mama Bee1 February 15, 2017, 09:32:30 PM
Today I went for my weekly blood work. I felt pretty badly, but by tonight I felt better.

Then tonight at 9:15 pm I got a call from the hospital saying that my blood count was low and I would need a transfusion.It wasn't as low as two weeks ago when I needed two units. I told them that I already have one scheduled for tomorrow. The doctor, who wasn't my regular doctor said that was okay, but if I feel light headed, short of breath, dizzy, etc.,etc.,etc he would advise that I go to the ER. It brought back a rush of memories of when I was hospitalized in NOv. when they didn't know what was wrong with me.

God is good.It is hard not to be scared sometimes. I haven't been reading the bible enough. I have to let go of all this other nonsense and focus on getting better.


: Re: Prayers for my health, please
: Eliza February 16, 2017, 02:35:48 AM
I pray for you every night, Mama Bee.  May God strengthen you.


: Re: Prayers for my health, please
: Mama Bee1 February 16, 2017, 06:45:38 AM
Thank you Eliza and everyone who is praying. Last night I was thanking God that the on call doctor is not my regular doctor. The connection was a not the best and when he mumbled my name I wasn't sure he was asking for me. He had an accent from a foreign country. My regular doctor speaks in a way I can understand. As much stress as I feel from this whole thing, adding in indecipherable speech would be making it worse. Hmmmm. I can just see it now. "Did he say stop the chemo drugs for a week" or "Plug the drugs in your cheek"?

I told a friend of mine about it and she made me laugh. She shared that she is pretty sure she got pregnant with her second child because she couldn't understand what the Chinese doctor who was helping her that day was saying to her. He gave her antibiotics while she was on birth control pills. He was talking to her and may have said to use another form of birth control. If so, she didn't understand him. She just stood there smiling and nodding her head to be polite. Surprise! Surprise!


: Re: Prayers for my health, please
: Mama Bee1 March 22, 2017, 09:08:31 PM
Good news. I don't need a transfusion this week due to a higher hemoglobin count. I believe the meds are working.


: Re: Prayers for my health, please
: D March 23, 2017, 12:37:20 AM
Excellent! Happy to hear it.  :sunny:


: Re: Prayers for my health, please
: Sherrie1003 March 23, 2017, 04:19:37 AM
That is an answer to my prayers.

Thank God for good news.

Sherrie


: Re: Prayers for my health, please
: RADDails March 23, 2017, 11:47:44 AM
Halleluia!!!!


: Re: Prayers for my health, please
: Cher March 23, 2017, 06:44:22 PM
 :blob1: :blob1: :blob1: :blob1: :blob1: :blob1: :blob1: :blob1:

Whoo Hoo!!!!!!!!


: Re: Prayers for my health, please
: Hope March 24, 2017, 08:05:00 AM
Awesome!


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