Please pray for my son - he has an undiagnosed illness

[blessingsindisguise]

So glad for the update.

I keep praying!

blessings

[Jeannie]

((((((((((clbmom)))))))))))

[clbmom]

Thanks again, so much.  We're back home and went straight from the airport to see DS.  He looks a lot better to me than when we left and says he's feeling a little better too.  We finally found out this afternoon his CT scans were all normal (HURRAAYYY!!!!!!), but he is still not well (vasculitis worsening, but currently afflicting only his skin - no major organ involvement suspected???) and his weight loss in under 4 weeks is now nearing 25 lbs.  We're all trying to keep the faith - as we go broke with insurance co. denials piling up.

AD hasn't spoken with DS in months, but since she found out he's so ill, has apparently turned his illness into a huge drama in HER life as if they were kindred spirits (which has never been the case).  I'm told she is feigning all kinds of concern.  If I wasn't so focused on DS, it would disgust me AD is ENJOYING his continued illness as a means to get attention.

[blessingsindisguise]

clbmom,

You probably have all ready done this, but if you haven't, please ask for a SW consult with the hospital for help with the bills.  There may be money available from other sources that you don't know of, and at the minimum they can set up a payment plan for you.

A while ago I got caught between two insurance companies not being willing to pay for treatment and ran up a huge bill.  I filled out paperwork, worked with the hospital, and then paid $25/month for a very long time.

Financial stress on top of everything else you have going on is not needed.


Thinking of you, and glad for the good scan.

blessings

[clbmom]

Thanks, Blessings!  I will definitely suggest DS ask for the SW consult.  He lost his job right when this all started and thought he had another lined up, but of course no one is going to hire him in the condition he's in now, and he quickly ran through his savings.  Because he's over 18, the bills are all his legal responsibility, but DH and I will likely wind up paying them and his outrageous COBRA premiums (isn't it ironic we're going to have to pay big bucks to the same company that isn't covering his treatment?!).  His docs are all pretty outraged re: the ins. co's no-pay position, so hopefully we'll (eventually) prevail on appeal....

[momof3]

I'm told she is feigning all kinds of concern.  If I wasn't so focused on DS, it would disgust me AD is ENJOYING his continued illness as a means to get attention.

 

So very sorry.  You sure don't need this right now. 

[Truebluemom]

CLB - Sounds pretty overwhelming.  Continued prayers for ds and your family.  Please keep posting both for information and a reminder to pray.  Hoping for the best outcome on all of this.  As far as dd, we need a puking icon.  Hope you can continue to ignore her.  Easier said than done.

[anne]

ClbMom,
Glad you were able to get away, even though it was stressful.  Very glad to hear DS is doing better! Will keep your family in our prayers.
 
anne

[Kristtie]

I am so sorry to hear this about your son.  I will be praying for all of you.  Please keep us updated.
Hugs to you

[clbmom]

Well... DS is in a full-blown relapse yet again.  Am afraid we'll be heading back to the ER shortly.  I'm exhausted and he's very depressed.

Again, I'm just grateful I don't have to worry about what AD20 is doing in my absence.

[neitlingme]

I'm so sorry.  I'll keep praying. 

Even though it is hard, try your best to smile.  It is so hard when someone you love is depressed...and so easy to follow.   Be careful....and take care of you!

Keep us posted.

[MarvDeb4584]

I'm praying your son gets better quickly and the doctors can figure out what is wrong with him.

[Truebluemom]

So sorry CLB.  Praying for you all.

[Vivian]

Still praying.  I can't imagine how worried you are.  I'd go nuts.

[clbmom]

Thanks, all.  I'm up keeping vigil (as if that ever did anything other than make me cranky the next day!).

They think he has vasculitis (inflammation of the small blood vessels) affecting his GI tract, skin, joints and ear - but don't think it has affected his organs yet.  It's and immune response.  They believe it was triggered by a bout of viral pharyngitis and/or the Rx he was given for that sore throat.  His particular vasculitis doesn't fit any of the specific categories though.

He's on steroids and pain & nausea meds - which leave him terribly constipated and he may now have a bowel obstruction.... if not cleared soon, he may have to have surgery.  I just wish he could get some lasting relief.  He's been scared and now he's growing anxious and very weary.  Weight loss since 2/18 is over 20 lbs.  They say these ups and downs may continue for several weeks, but claim generally he is getting better overall.  I'm not convinced.....